Still here… 

I haven’t dropped off the face of the earth, but I had a hard week and struggled to get through it. There was a lot of catching up to do at work because I’d been off for week, and my body chose the wrong time to crash on me. It sucked because I pride myself on having a good work ethic, but this week I didn’t want to be there and was miserable. 

I haven’t really had enough spoons to post anything interesting, and didn’t want to come on here and just whine, so I’ve been laying low. I’m a bit better now. 

I did have my annual physical this week, and my doctor confessed she has no idea what to do with me. She did talk about sending me to the dysautonomia clinic at Vanderbilt University if I was willing to travel. I’m not sure about that. I’m grateful to have my hunch confirmed – happy to have the diagnosis only because feeling like the doctors thought it was all in my head sucked – but it’s still basically a symptom rather than a cause and I’m not sure it’s where we should be focusing. 

She’s researching what our next step should be and getting back to me, and we’re tapering off the Florinef in case it is what is making me feel so bad. I’m going to try increasing my salt instead. I ordered some special salt tablets, but in the meantime am snacking on jerky and salted nuts. 

Anyway, there’s been a lot of things I’ve been wanting to write about, like the saga of the air conditioner and the latest exploits of Eater-of-Things, and hopefully I’ll have something up soon. In the meantime, here’s a picture of a little hoverfly who hung out with me at lunch today. 🙂

Featured image: Hoverfly on the edge of a metal table. 


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Powered by

Up ↑


A Site of Beautiful Resistance

yarn and pencil

a creative life on the spectrum

Mast Cells & Collagen Behaving Badly

My journey with Ehlers-Danlos Syndrome, M.E. & Mast Cell Disease

Musings of a Dysautonomiac

Working on Being Awesome Without Feeling Awesome

Lavender and Levity

Laughing at myself, and learning to love (live with) it!

Sleeping while Alive

A Narcolepsy Primer

Wilde About Dogs

Just another weblog

Oh Twist!

Shining light on a twisted condition...

Zen and the Art of Tightrope Walking


"What on earth just happened?"

Trying to work out the world. Not always successfully.


a journal about spiders found around Western PA

Musings of an Aspie

one woman's thoughts about life on the spectrum

Queerly Autistic

Queerness. Autism. Dogs. All the good stuff.

Synthetic Genetic Shakespeares

Examining the implications of science and technology


This is a blog about spiders.

%d bloggers like this: