I haven’t dropped off the face of the earth, but I had a hard week and struggled to get through it. There was a lot of catching up to do at work because I’d been off for week, and my body chose the wrong time to crash on me. It sucked because I pride myself on having a good work ethic, but this week I didn’t want to be there and was miserable.
I haven’t really had enough spoons to post anything interesting, and didn’t want to come on here and just whine, so I’ve been laying low. I’m a bit better now.
I did have my annual physical this week, and my doctor confessed she has no idea what to do with me. She did talk about sending me to the dysautonomia clinic at Vanderbilt University if I was willing to travel. I’m not sure about that. I’m grateful to have my hunch confirmed – happy to have the diagnosis only because feeling like the doctors thought it was all in my head sucked – but it’s still basically a symptom rather than a cause and I’m not sure it’s where we should be focusing.
She’s researching what our next step should be and getting back to me, and we’re tapering off the Florinef in case it is what is making me feel so bad. I’m going to try increasing my salt instead. I ordered some special salt tablets, but in the meantime am snacking on jerky and salted nuts.
Anyway, there’s been a lot of things I’ve been wanting to write about, like the saga of the air conditioner and the latest exploits of Eater-of-Things, and hopefully I’ll have something up soon. In the meantime, here’s a picture of a little hoverfly who hung out with me at lunch today. 🙂
Featured image: Hoverfly on the edge of a metal table.