Still have all my digits, but lost some spoons

I managed to build both deck gates last week, and they came out really nice! I didn't incur any injuries, but it took me two days to get it all done and afterwards I crashed hard - I spent most of the third day of the long weekend curled up under a blanket on the...

Dogs and Cats and POTS, oh my!

My four days of solitude passed much faster than I would have liked. On the first day, my biggest accomplishment was to trigger some sort of POTS episode that almost made me pass out (more on this in a bit) and by the second day, I felt guilty for sitting around and embarked upon one...

Recharging and refocusing

My partner left early this morning to visit an old school friend for the next four days. Since getting the nine pets taken care of in the morning is a lot of work, and I am still feeling run down from the Charleston trip, I decided to take today and tomorrow off to have four...

36 Hours

Well, I am home. I left the house on Thursday at ten-thirty in the morning and pulled back in around four-thirty in the afternoon on Friday, so that was thirty six hours altogether, with over twelve hours of that on the road. Plus picking up and dropping off the rental car. I am beyond exhausted,...

Flowers and fatigue

Spring is my favorite time of year. Everything is fresh and new and vibrantly alive, the flowers are all blooming, and the various many-legged critters that disappeared for the winter are returning. Summer is nice, but I don't cope with the heat so well these days, and fall is beautiful but it just makes me...

POTS for breakfast

I had another bad night; three and a half hours of sleep to follow up on the five I got the night before. Last week, I felt really good and was even sleeping much better, and this week it's like every single thing is flaring up - I'm not sure why, except that maybe 'what...

Regaining control

This week I had an EDS consult I'd scheduled months ago (before I even had the actual diagnosis, since she books up so far ahead for those appointments) and I think it went pretty well. I liked her, and the whole experience was pretty positive; she also has a family practice out of the office...

Eater-of-Things has a midnight snack…

Though my sleep is better than it was, thanks to a rigid sleep schedule, a pitch-dark cold room and a whopping bedtime dose of gabapentin, I still wake up several times a night. I have neurogenic bladder issues, so that's also part of it.  The nice thing is, with me having my room down in...

The holiday stress ratchets up…

After the unpleasant mess of the last holiday, I'd hoped this one would be different. Once again, we had both family obligations to juggle, and an invite from a friend to spend Christmas with her family, something we've done for the past several years. The latter is the more appealing option, but the former is...

My first adventure with compression stockings

This will be the first of a series of posts, probably, as I figure out if compression socks/stockings will be helpful for my POTS symptoms, and if so, which ones work best for me. The first ones I've tried are 'Jomi cotton compression socks' which are black, knee high, and mostly cotton with a bit...