Dogs and Cats and POTS, oh my!

My four days of solitude passed much faster than I would have liked. On the first day, my biggest accomplishment was to trigger some sort of POTS episode that almost made me pass out (more on this in a bit) and by the second day, I felt guilty for sitting around and embarked upon one... Continue Reading →

POTS for breakfast

I had another bad night; three and a half hours of sleep to follow up on the five I got the night before. Last week, I felt really good and was even sleeping much better, and this week it's like every single thing is flaring up - I'm not sure why, except that maybe 'what... Continue Reading →

Regaining control

This week I had an EDS consult I'd scheduled months ago (before I even had the actual diagnosis, since she books up so far ahead for those appointments) and I think it went pretty well. I liked her, and the whole experience was pretty positive; she also has a family practice out of the office... Continue Reading →

The holiday stress ratchets up… 

After the unpleasant mess of the last holiday, I'd hoped this one would be different. Once again, we had both family obligations to juggle, and an invite from a friend to spend Christmas with her family, something we've done for the past several years. The latter is the more appealing option, but the former is... Continue Reading →

Snow daze

I meant to get on this blog all last week; getting that diagnosis was such a huge thing after many years being bounced from specialist to specialist and there  is so much I want to say about all this, but my POTS and other dysautonomia symptoms have been really out of control lately and it... Continue Reading →

POTS is (still) the pits

I had a good spell for a little while where the POTS and other dysautonomia symptoms improved so much that I started to question whether I had just exaggerated how bad they were to begin with, in my mind. I don't know if that sounds weird, but I have this constant worry that people will... Continue Reading →

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