Still here

It's been over a month since I have posted. Life got in the way. Mostly, I've been dog-paddling my way through the messy situation at work. There were a couple of meltdowns and lots of stress, and I took a week off to recoup my sanity. Tomorrow I go back and I won't say there... Continue Reading →

Cascading clusterf**k

Warning: foul language ahead Even though I have an epic potty-mouth (things like home improvement projects are not a PG-rated event in my house) I try to keep the blog fairly clean so as not to alienate someone, but I find it hard to write this post without utilizing words like 'shitshow' and 'clusterfuck' so... Continue Reading →

This is who I am, not what I have

I woke up this morning and had a small revelation: my hypermobile Ehlers-Danlos syndrome, like my autism, is not something I 'have' but rather something that is so much part of me that it has shaped my entire existence. If that sounds like I am just now figuring out something that should have been obvious,... Continue Reading →


I had my first EDS-related dream last night. In the dream, I was frustrated and annoyed because my left shoulder kept subluxating constantly. It didn't hurt, but there was a sort of shift-bump-click that kept happening every time I moved my arm and it was irking me to no end in the dream. Incidentally, this... Continue Reading →

Obstacle course

I know I have sort of dropped off the face of the earth for the past week or so; I have been busy procuring and organizing my medical records and gathering more detailed medical history from my family for the forms I have to fill out for the genetics center.  It's been a frustrating and... Continue Reading →

Frozen on the train tracks 

My partner's family is coming to visit tomorrow. I have been silently dreading this all week. Dreading it because... There's a lot of drama between her parents. We've got a 'don't ask - don't tell' thing going on as far as the whole gay thing. I've managed to keep my foot out of my mouth... Continue Reading →

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